Support Organizations for Oncology
American Cancer Society
A national network of employees and volunteers who implement research, education, and patient service programs. Although programs differ according to state and province, some widely available programs are patientto-patient visitation, transportation to appointments, housing near treatment centers, equipment and supplies, support groups, literature on a variety of topics, summer camps for children with cancer, etc.
American Childhood Cancer Organization
Free resources include: a yearly bibliography, a quarterly newsletter, books, e-books and various handbooks to help families of children with cancer. Some help with outpatient parking. See the “Books” section of this guide for a list of publications available on their website.
Battle For a Cure Foundation
Provides support and financial assistance to families of children diagnosed with cancer. At Christmas, they will send a $50 gift card to those in need (may reside anywhere in the US). Apply online.
Beyond The Cure
Information about the late effects of a childhood cancer diagnosis and treatment. Scholarship program, web conferences, and continuing education for nurses. Beyond the Cure is a survivorship program of The National Children’s Cancer Society.
Association of Cancer Online Resources
Online cancer communities designed to provide timely and accurate information in a supportive environment for parents, caregivers, family members, and friends. Discussions cover: clinical and nonclinical issues, advances pertaining to all forms of a specific disease, patient and caregiver experiences, psychosocial issues, new research, clinical trials, long-term side effects and current treatment practice.
Provides telephone, online and face-to-face counseling, support groups, education, publications and financial and co-payment assistance. Professional oncology social workers offer personalized care, and all of our services are free of charge. To find publications on living with cancer, search for topics that interest you such as chemobrain, etc.
Children’s Cause for Cancer Advocacy
Advocacy and policy voice for children with cancer
Children’s Neuroblastoma Foundation
Comprehensive resource for families dealing with neuroblastoma. Publishes a parent handbook detailing treatment, but also some aspects of cancer care that are applicable to other diagnoses (neutropenia, etc.).
CureSearch National Childhood Cancer Foundation
Provides up-to-date information about childhood cancer from pediatric cancer experts. Has sections for patients, families, and friends to help guide them on how to support a child with cancer. Also has long-term follow-up guidelines for young cancer survivors at www.survivorshipguidelines.org. These guidelines provide recommendations for screening and managing late effects that may result from pediatric cancer treatments. This group also has developed a mobile app that allows you to organize treatment dates, track side effects, view reports, see trends, etc. 1-800-458-6223
Curing Children’s Cancer Fund
The mission of the Curing Children’s Cancer Fund is to find a cure for childhood cancer by providing financial support for some of the country’s leading pediatric cancer researchers, including those at Texas Children’s Cancer Center. The results of the cutting-edge research are shared with physicians around the world and benefit the children under their care.
Information on how to advocate for a child’s educational needs as they return to school after cancer treatment. The LIVESTRONG at School curriculum (free at livestrong.org/What-We-Do/Our-Actions/ProgramsPartnerships/LIVESTRONG-at-School) offers lessons for grades K–12 to teach students about cancer.
Leukemia and Lymphoma Society
Free educational programs for parents and teachers such as Staying Connected: Facilitating the Learning Experience During and After Cancer. Also has the Trish Greene Back to School Program, which includes publications, DVDs, videos and programs that can help you discuss a cancer diagnosis with teachers and classmates.
National Cancer Institute
Publications like Young People With Cancer and a dictionary of cancer terminology
National Children’s Cancer Society
Services include: online support network for parents of children with cancer, educational materials, publications and financial assistance for treatment-related expenses. They also partner with Agility, a national provider of discount prescription drug cards.
Pediatric Oncology Resource Center
List of books, pamphlets and other resources for parents.